Claire Francis
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Health consultant working in digital healthcare to improve the care of people with cystic fibrosis across Europe.
CF Europe’s new initiative, VERA, aims to spread the collection of Real World Data (RWD), led by patient organisations in their own countries, where CFE members wish to enhance their capabilities, or where no such capability currently exists.
We will reflect best practices happening in many European countries today to enable the design of a Europe-wide model to advance access to optimal treatment and care for people with CF.
Data holds the key to helping people with CF understand their condition and will help to keep people with CF healthier across Europe. It provides an opportunity for autonomy and empowerment and will change the relationship with their healthcare, providing a rich picture of an individual’s health.
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