Hemofili Hastalarının Bakımında AB Faktörü
Date du début: 1 sept. 2015,
Date de fin: 31 août 2016
Our project is called EU Factor in the Care of Hemophilia Patients. 51 student participants from nursery department which are receiving their education from our institution Private Fethiye Final MTAL and our partner institutions, attended to our project. The participants’ ages were between 16 and 18 and they were primarily girls because we support them with positive discrimination. Our project was completed in Italy, Spain and Germany in the exact time we planned and with the exact program we created in the project application form. 6 of our expert teachers escorted our participants. The goals and expectations we mentioned in the project application form were reviewed by expert teachers and this project was founded “successful” by such commission.
The ratio of genetic inherited blood disorders like hemophilia, thalassemia and sickle cell anemia is increasing in countries where consanguineous marriages are seen mostly. In our country, one in five marriages is consanguineous. “Hemophilia” is a real community problem in a country like us which has a lot of consanguineous marriages. Even though such disease is preventable, it being so common showed us the need of; doing new research, easing the diagnosis-treatment conditions, improving care and health services and speeding the research on preventing the disease.
According to World Health Organization and World Federation of Hemophilia (WFH) data, there are almost 650.000 hemophilia patients. In EU countries, decreasing the ratio of disability related to the disease is more important than the frequency of the disease. The disability ratio is now %2 in EU countries but in our country, the ratio of disabilities is 29 times more; it is %59. This situation formed the reference point of our project. It presented us the chance to benefit from Europe added-value, inspire the experiences of future experts and serve to our own country. We took this chance and we created a common awareness on this issue which underlines the life of humans even though they just look like statistics.
In our country, one in third of hemophilia patients’ lives in Aegean and Mediterranean regions. In this context, our students needed the EU level of education on hemophilia in these topics: hemophilia care model, community scan/genetic advising and family planning services, awareness studies/education in the context of community health services, birth prevention techniques of hemophilia patient by using pre-birth diagnosis methods, treatment, diagnosis, care and nursing services to the patient, expanding the length of life, research on increasing their life qualities and support services to the families. All of the participants completed these trainings with this project and they expanded their knowledge.
In addition, our participants had the chance to improve their vocational foreign language. They received a certificate for their education as “Hemophilia Nurses” and they had the chance to find employment, know different cultures and live in them, promote our country’s culture in a positive way, develop self-confidence and understanding and become role models for their friends. Some of these topics are either accomplished or will be accomplished in the medium term.
Goals and reached results of our project; gaining vocational skills, information and experience for our participants students according to the decided needs and let them have certificates (both national and international),
Presenting them the chance to work with their EU level colleagues, letting them experience different environments, giving them the chance to apply their knowledge in a different race, language, gender and sociocultural structure,
Providing the transfer of necessary and effective application, tools and equipment on hemophilia (class notes which have education notes, educative guide for practical applications, current hemophilia literatures (power point presentations, slides/notes and forms, national and international books, visual and/or aural education materials, CD, video movies and pictures, etc.),
Creating unique products and outputs about the project (publication, press release, booklet, brochure, CD/DVD, etc.),
Spreading the results of the project (health, education, associations, NGOs, press/media, social media sites, etc.) and informing the decision-makers,
Learning effective care applications for hemophilia, decreasing number of deaths and workforce loss and becoming a part of the contribution to the socioeconomic development of our country,
We are leading them and contributing into them to be employed in the field because of the certificates they received.
Mobility operation was 21 days and 3 flows in total. It was accomplished between the dates February 28th, 2016 and May 25th, 2016 in places like Germany’s Berlin, Italy’s Modena and Spain’s Marbella. We haven’t faced any unsolved or harming problems during the flows.
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