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European HD Youth Camp 2016
Date du début: 1 janv. 2016, Date de fin: 31 déc. 2016 PROJET  TERMINÉ 

The European HD Youth Camp 2016 is an arrangement for adolescents/young adults who share heavy challenges living with HD in the family. They have a parent who has the hereditary, neurodegenerative disease - Huntington's disease (HD). Many children growing up with a sick parent take a lot of responsibility to take care of their parent. At the same time they have 50% risk of having inherited the disease themselves. Shame, guilt and denial are very common phenomena in HD families. A lot of those affected by the disease feel very alone. The goals of the camp will be to improve knowledge, develop skills, gain empowerment, create support and being together a cultural exchange. During the camp the participants will have the opportunity to get in touch with other young people in the same situation. They will, through good information, activities and discussions, get a better understanding of many of the aspects and emotional reactions to HD. In the program there will be a focus on team-building to ensure that the participants establish best possible relations with each other so they can seek support and understanding during and after the camp. 39 Young people and 6 young adult volunteers from United Kingdom, Ireland, Belgium, Germany, Sweden and Norway will be together with 5 staff leaders for 5 days. The camp will be held in Grosvenor Hall, Kent, England. The camp program will be a mix of teambuilding activities, workshops, information, group discussions cultural activities and leisure activities. We expect the camp to have a powerful impact on the lives of these young people and long-term we feel camp will enable these young people to believe in themselves, overcome the barrier of HD in their lives and achieve the goals they set themselves (whether that be educational, career or life achievements) - we want them to aim high. It is not uncommon to see a change in attitudes from participants on their future path in a positive way and that is our long-term goal for camp participants.



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