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Platform for sharing best practices for management of rare diseases (RARE-BESTPRACTICES)
Date du début: 1 janv. 2013, Date de fin: 31 déc. 2016,
RARE-Bestpractices will develop a sustainable networking platform, supporting the collection of standardized and validated data and efficient exchange of knowledge and reliable information on rare diseases (RD).RD are characterized by low prevalence (EU – 5:10000 persons). There are more than 5000, overall affecting about 30 million citizens of all ages in the EU. RD are often life-threatening and ...
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